Last Wednesday night we took turns sleeping with Jack. We watched his chest rise and fall and waited. By 3:00 a.m. Thursday we knew he needed help. It was happening again. His stomach was moving a lot as he tried to push air in and out of his airway. We could see his ribs and the muscles in his neck, with every breath. He was also short of breath and making these puff sounds with his mouth.
I bundled him up and headed to Children's Hospital. It was a good morning to go. There was no one around and we had a room immediately. This was our second visit to Children's so I knew what to expect. They started the protocol immediately. A liquid steroid and an hour of intensive ventolin, five puffs every twenty minutes. Next, Jack had to show that he could go for four hours without ventolin and then we could go home. At the three hour mark, he was working really hard to breath. More venoilin was given and that meant we had to reset the clock. Three more hours, more ventolin needed and again the clock was re-started. Finally at 2:00 p.m. after almost twelve hours in the ER, the doctors said he had to be admitted because he was still unable to go for four hours without ventolin.
Jack was less then thrilled about the prospect of having a sleep over, even after I tried to pass the hospital off as a hotel.
Some things that are scary:
1. Watching your child struggle to breath and not being able to do anything about it.
2. What lack of sleep can do to your brain. The barista at Starbucks looked at me like I had grown two heads when I ordered a tall, grande latte.
3. The addictive powers of the ipad. After thrirty six hours at the hospital with a lot of screen time (what else can you do when you are hooked up to machines) full detox from the ipad was in order for Jack.
It was determined that it is in Jack's best interest to take Alvesco (corticosteroid) for the winter to avoid future hospital visits. While the hospital stay was stressful, we now have a pediatrician and a referral to the Asthma clinic in our area.
I can't say enough good things about Children's Hospital. The service we received was outstanding. All of the doctors and nurses were patient and kind and took excellent care of Jack. For that, I am so grateful.


Oy. What a bummer. Steroids all winter. Boo. Glad you have an appt with a pediatrician. I feel like we got nowhere in finding out why Theo ended up at Children's; although, for a much shorter period.
ReplyDeleteThe unknown is scary. I hope you are able to get answers for Theo soon. Does he have a puffer now?
ReplyDeleteIt is so scary when your kids are sick! We had a good experience at Children's last month too. Hope Jack is back to regular self ASAP...and I hear you on the iPad withdraw business too!
ReplyDeleteVery scary! Children's hospital has become our second home, we are pretty lucky to have such an amazing facility! My daughter, unlike Jack looks forward to hospital trips - but we take that as a blessing. Glad he is okay!
ReplyDeleteSteroids all winter... :( That's what I was on last winter. Not much fun. Hope Jack is feeling better soon though! Such a scary experience.
ReplyDeletevery scary indeed. hope your son will be better soon and you guys will be out in there the soonest.
ReplyDeleteOh poor little Jack... As listener of the Two Hosers I
ReplyDeletealso do review your family blog. I can truly imagine your thought, fears and all the stress you
do have to survive as we had a hard time last year to survive with our 3 year
old son struggling with PFAPA. We needed several month to figure this out and
additional time to get it under control using Homeopathy. All our best wishes
to all of you! Take care….!!!!
Thanks Oliver. That is very sweet of you. Jack is doing much better. I looked up PFAPA because I didn't know what it was. I hope your son is doing okay and not having too many recurring episodes.
ReplyDeleteHi Lisa, we are back in "normal" life since spring. Thx! But as you mentioned: The unknown is scary - I you know what to fight against everything gets easier!
ReplyDelete